Kind or Write?

I’ve been finding it challenging to encapsulate life with my daughter, Bink, lately. Hard to shape words for the page and even for casual conversation with friends, many of whom have their own experiences with parenting and/or caring for people they love who have special needs. It’s not for lack of material. Bink continues to […]

Tender

Tender. Unless I am speaking of meat, which I mostly don’t, the very word owns its ness, as in, what is tender evokes tenderness, and what calls that forth in me is that which I am drawn towards, or s/he whom I draw close, or want to. Draw close,touch, be connected with, and to— it’s […]

Dear Future Roadmaker

It’s still April, still Autism Awareness month. I’m thinking, as I so often do, of all the people I have met on my journey of raising a daughter with special needs. There have been some wonderful teachers and some exceptional therapists (physical, occupational, speech and language, to name a few). There have been good hearted […]

To Sleep, Perchance to Wake and See the Stars

Bink does not sleep solidly through the night, ever. When she was younger it was especially challenging, because she’d wake up and need me to be right there with her, and she’d often be up for hours. Sometimes, after waking at 1 or 2 am, she’d stay up the rest of the night and all […]

Arrivals

I’m posting this a day before my daughter’s 26th birthday. I’ve always felt, with certainty, that we were meant to incarnate this way, as mother and daughter, at this particular time in the life of this planet. I don’t need to know why, because I know it’s true.  Happy birthday, Bink. You are the best […]

The Meaning of Compassion

The Kuan Yin She keeps watch in the warm corner of my bedroom, her bearing almost more regal for the rivers of cracks and generous chips that mark her faded turquoise. Her right hand, the deliverer of action, folds into Gyan Mudra, the gesture of consciousness. Preparing to take her picture, I haul myself into […]

Little Things

It was, in my home, an ordinary weekend morning. I rose before him, he before her, the felines were fed. I made three different kinds of tea, two prepared with stevia and soymilk, one with honey. It was the latter that sparked it. She who has such challenges, she who’s made such gains, she whom […]

The Sings

Someone posed the question: What is it that brings you untethered delight, especially when nobody is watching? I’ve a bouquet of such things in my heart, but the biggest flower right now would have to be the sings. May I explain? There are some tells. She needn’t speak. Autism tends to announce itself. It’s her […]