Gifts and Visitations

It’s been just over a month since my dear friend and soul sister Marina died, after a quick and nasty tussle with appendiceal cancer. She visits my consciousness daily, in ways both fleeting and substantial. We talked a lot about the afterlife in her last months. She told me clearly that, when she visits me […]

Little Big Thing

“Stay in awe of life. The little things are the big things. “ ― Richie Norton “I’m cold.” Bink had just gotten up, a good hour later than she used to get up on any given pre-Covid Monday. My eyes scanned her body, noting the hybrid pajamas I’d hastily grabbed for her to put on […]

Collateral Sorrow

It’s been a time of times, a steady landslide of uncertainties. Yes, the Covid, the shutdown. Yes, Bink and so many other adults with disabilities being home all day every day for many weeks, with all the usual programs and activities canceled. Yes, the mass suffering and loss that has accompanied this pandemic around the […]

The Uninvited Guests

What a time! We are seeing and hearing wide ranging effects of the Covid-19 pandemic on, it seems, every populated part of our planet. In our corner of the world, Bink’s autism and accompanying dependence on schedules has collided headfirst with current realities. Every activity in her life, from her weekday program to her favored […]

Brown Girl Hair Has Left the Building

Bink loves girl hair. For the uninitiated, this translates to long straight hair hanging down, on a female of any age. Preferably, the hair should be visible equally on the right and left sides of her head. I’ve had long brown hair for 25 of my daughter’s 27 years. At one point, it grazed the […]

My Daughter, the Foodie

Bink loves food. In fact, her relationship with it goes far beyond what tastes good and satisfies her hunger. She loves looking at cookbooks, finding recipes on the computer, and watching cooking shows. The painting subject she selects for her weekly art class is often something edible. The paintings on our walls at home, and […]

Kind or Write?

I’ve been finding it challenging to encapsulate life with my daughter, Bink, lately. Hard to shape words for the page and even for casual conversation with friends, many of whom have their own experiences with parenting and/or caring for people they love who have special needs. It’s not for lack of material. Bink continues to […]

Tender

Tender. Unless I am speaking of meat, which I mostly don’t, the very word owns its ness, as in, what is tender evokes tenderness, and what calls that forth in me is that which I am drawn towards, or s/he whom I draw close, or want to. Draw close,touch, be connected with, and to— it’s […]

Dear Future Roadmaker

It’s still April, still Autism Awareness month. I’m thinking, as I so often do, of all the people I have met on my journey of raising a daughter with special needs. There have been some wonderful teachers and some exceptional therapists (physical, occupational, speech and language, to name a few). There have been good hearted […]