Welcome to Autismville

 

Shimmering minnow leaves

AUTISMVILLE

I can’t tell you
it is an unpleasant thing
to live in the quirky neighborhood,
on the far side of the river,
a good ways from the thickest part
of the frantic throng.

Here, we are daily looking up,
fixating and stimming
on green minnow leaves
that shimmer against the waters of the sky.

Here we have our own customs;
the daily waking song,
the recitation of dreams,
the morning questions and videotaped answer
for her to play back over and over,
the reassurances:
Yes, there will be snack. Yes, Mom is a girl.
Yes, there will be girl hair when we leave.

The life we’ve grown into,
first she and I and then he
who married into this confluence
of ordered disorder,
this life has authentic charm.

We go slow, we don’t try to measure up.
Our victories are sweeter
for how long they take to manifest
and mysterious
for how quickly they can disappear.

I can’t say it’s tragic in this virtual village,
this parallel universe
peopled with other singular folk
who understand the need for things
like space and processing time,
patience and velvet compassion,
smooth voices, soft dolls,
sweet routine and
more spice in everything.

We have magic here, I tell you.
Songs that play in color,
voices with texture,
folks who spin and swing and
hum and sing.

And the leaves! The glorious
minnow leaves,
dancing upstream,
between the clouds,
and laughing.

Melinda Coppola

 

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5/24/17

Today I celebrate my incarnation

Fifty six trips around the sun,
carrying a moniker
that took decades to like,
and I continue,
residing more,
or sometimes less,
inside this soft tent of skin
held up by strong bones
that shape this form
we keep agreeing to call me.

So much to marvel at,
a couple tens of thousands
of sleeps, of sunrises,
so many chances
to shake it off and begin again.

If I could line you up–
the ones who noticed,
and the ones who never did,
the ones who took me in,
or under a wing,

and those who laughed at me,
and those who laughed with me,
and those I loved but never told,
and those I didn’t love enough,

and those who knew I could
when I thought I could not,

and those who spoke truth
even when it shattered me,
and those who lied to me,
and those who betrayed me,

and those who were afraid of me,
and those who were afraid with me,
and those who lost hope,
and those who gave faith,
and those who questioned,
and those who accepted,
those who showed up
those who left without leaving a note,

those who explained themselves,
those who never tried,
and those who encouraged,
and those who could not,

if I could gather you all together
I’d go bowing through the crowd,
hands in loving mudra
thanking each of you
with my sentient heart,
for all of it.

As it is,
I ruminate
on how you helped me grow,
and how I hope
perhaps I helped you, too.

I kneel and praise a universe
that does this,
that keeps us
offering ourselves to each other
over and over,
as rough stones,

each encounter smoothing a jagged edge
through pleasure or pain,
returning us as pearls
to a larger sphere in need
of our perpetual adornment.

Melinda Coppola

7 AM ( more autism awareness) | Autism

7am

I entered your room quietly,
with loving stealth,
stood inches from where you slept
curled into the warmth of your sleep nest,
pausing one round moment
to take in the sight of you, just
to hug you with my eyes
before we began
the ritual we’d perfected over
twenty four years of mornings.

There we were
in our assigned places,
me leaning gently above,
you just beginning to stir
as I sang you awake.
There were your hands
reaching for my hair,
first right side then left,
like always, like a touchstone
to remind you it’s safe
to be awake and alive.

Pink walls and ceiling, pastel rug,
whispered, made-up song,
you under soft
layers of things;
assorted spreads, a quilt, some blankets,
one embroidered with your name
and the date you debuted,
a gift at birth from a relative
on your now absent
dad’s side that met you
once maybe, whose name
I’ve quite forgotten,
who is surely long dead.

I flash-mused on what she’d feel,
this nameless giver of named blankets,
if she could ghost unseen
into your bedroom, this morning
to see what you’ve become.

Would it be grief
for all the ways you’ll never be,
the way you arrived
with unseen challenges,
diagnoses not yet named,
a baby who would remain,
in many ways, a child?

Would it be curiosity,
your differences intriguing,
offering perspectives
she’d never considered
while alive,
tapping on the doors
of her phantom compassion,
awakening a deep patience,
a human reunion with her own
estranged otherness,
the selves she, while living, shunned?

I hope she would be filled
with the color of pure delight
as she saw you still loving
her decades old gift,
for its essential pinkness,
its enduring softness,
its well-named comfort
in the place you call safe,
in the place you dream,
in the place you are perfect
with no one there
to tell you otherwise,
in the place you dream.

-Melinda Coppola

Light it up blue?

 

Autism Awareness month is April,
World Autism Awareness Day, April 2
and, in case the day lacks color,
(as if any day with Autism in it could be dull),
the mysterious Namers-of-Days-and-months
have painted it a medium sort of blue.

I wonder who decided this;
and how it was chosen,
this perfectly ordinary second day,
and weighted with a long middle
moniker, like a fish
plucked out of the ocean,
tagged and thrown back
into what used to be
a perfectly ordinary fourth month.
And why a color? Why this one?
Does Autism look like blue
to outsiders?

Pondering this, I roll up my sleeves,
prep the tub for her,
the one who turned my life on its ear,
she who makes me laugh,
she who wears me out,
she who is a master of repetition,
she who defies reduction,
who is multi-colored, many-hued.

She who is unaware of your awareness,
who, if asked, would mutter “ Not interesting”,
she who needs help with a bath
but can take a thing
and spell it backwards,
report to the air/no one in particular
how many redundant vowels it contains,
and how her lunch reminds her
of Home on the Range.

She who hears songs in color,
who does not stay in her bed all night,
who is frightened of beads with holes,
she who knows if there’s a day to be aware of
it’s the fourth Friday in February,
which is called Ate Baby Kate, and that means bad,
and therefore must be worried about
many months in advance,
she who can sing whole CDs in order,
she who tells me thirty times a day
that I’m a girl ( in case I forget)

She who needs more than I have
who gives more than I need
who has more than you think,
who is more, so much more,
than you give her credit for.

And so, dear you-who-aren’t-aware,
please allow me to set the record straight.
Autism is multi-colored,
and awareness is every single day,
and no blue second day of any fourth month
will ever matter more
than your interest, your kindness, your respect,
your willingness to help us challenge
a world that would reduce anyone
to an assumption
or a label
in one color
on one day
within one month.

-Melinda Coppola

 

 

 

 

I’m just the messenger

Lurleen Lumpkin, from The Simpsons

 

Sometimes, it’s a struggle to write. Lots of sometimes. There’s so much inside that wants to come out! So, picture this: I’m at my desk, all serious-like, trying to hone words into pictures, to allow the pen to move and accept what comes without judgement, and then to be brave and put it out there for you to (hopefully) read. I’m kind of hunched over in a very un-Yogic way. My brow is probably furrowed. And then this, …this stream of country western song lyrics comes pouring forth! I mean, I’ve always wanted to learn to play guitar, but this??  So, after my laughter died down a bit, I sat up straight, took a deep breath, and put it into this blog post. The Muse may have called the wrong number, but who am I to hang up the phone?

 

LAST NIGHT THE WIND

It was blowing and moaning and
(I imagine)
Singing and lowing and
( I believe)
weaving it’s way into and through
any old regrets I’ve had about you
What’s a grown woman to do?
Last night the wind
had me singing along, stringing along
my old Pollyanna-ly ways
Last night the wind
had me winging and winging
til my arms felt they’d burst
with me bringing and bringing
the news of some positive positive shift
the news of some mighty big changes.

When all’s said and done,
life rearranges and don’t we adapt or
we die? Sometimes
we adapt and that means something ends
as a means to an end, so
can’t we allow
The wind to go blowing and moaning
singing and lowing and
weaving it’s way into and into and through
Removing old regrets I once had about you
Goodbye old regrets about you

 

Melinda Coppola

Alone, I am island

Photographer unknown.

I am an unpopulated island
in a teeming quicksilver sea.
I am a sturdy outcropping,
raw, rocky, ravaged
by two thousand years of volcanoes,
seismic shifts.
I am a testimony to the chaos
from which all life begins.

“We’ll smooth, says the ocean, it’s what we do—
soothe and smooth and
flatten your sharp edges, make nice
with all your singular points of upheaval.

Together we’ll make sand.
It will be soft between the toes
and the claws and the webs
of the two and four footed ones
that will someday want to walk your beaches.”

I am an island of resistance
in a placating sea. I will not crumble
under ocean’s incessant coax
towards making more of less,
or less of more.

I am an unpopulated island
in a sea of we-will-change-you.
I live, not to please or appease
a greening
groaning planet,

but to touch the very heavens
with my rocky peaks!
To push the clouds aside,
write my story, cursive
but not cursory,
in pointed stone
across the smooth blue sky.

–Melinda Coppola

Poet’s notes:  I am truly captivated by stories of people like Charles Baird, who lived for a year alone on an essentially unpopulated island off Alaska. I am introvert and dreamer enough to imagine a current of deep and wild joy that could fuel such an endeavor.

Seeing Through

I am so pleased to share that the poem below was published on the Songs of Eretz Poetry Review yesterday!  If  you want to see the actual page with the Editor’s choice of photo, and check out Song of Eretz Poetry Review in  general, click here:

 

Seeing Through

Melinda Coppola

In the summer, after rain,
over mint iced tea this time her weary
eyes, careless gray hair fell, heavy,
onto drooped shoulders. The blouse
so inappropriate, I thought, seeing
right through it. A woman should
wear a nice bra at least, I thought, seeing
right through.

I hadn’t wanted it, this awkward date.
She’d caught me off guard with her call.
These days I loathed forced smiles,
cheeriness that smothered the bare
truth of my life. Avoided Let’s have coffee
at all costs. Off guard.
I tried not to look again at her
tasteless I thought again bra
that wisp of a blouse on one her age
seeing through it. Right through.

Focused now on her thin lips, feeling
downright mean
I made to-do lists in my head
as she went on and on trying
to reach a point, perhaps, or find words
…died….I heard her say
murdered in his apartment. They think
my heart skipped a beat
it was a random burglary he
shame crept crimson into my selfish
was to be twenty the next day.
Her eyes bore holes into my skin, words
peeled away my feeble layers. Seeing right through.

-Melinda Coppola

Poets Notes: This piece sprung up from the surprisingly rich ground of mild depression, fertilized with distraction and the human tendency to make assumptions about others without actually entering their story.

My Calling

gifted cairn

From an Inky Path writing prompt “ Writers Manifesto for Hard Times”, about finding your own unique contribution to addressing the challenges of our times.

As I was finishing this, I received a call from my daughters day program informing me that a planned trip to swim at the JCC
( Jewish Community Center, for those who are unfamiliar) was aborted due to a bomb threat.

—————————————————————

My Calling

My revolution is a quiet one.
It stems from seeds planted by spirit
before I was born. It leafs
only with the good rain of compassion
that sometimes tastes like tears. It blooms
only in the rich, common human soil,
the ground trodden and tilled by millions of sisters
and brothers who have one heart that beats
in its own time, just like mine.
Just like me.

My struggle is one tiny flexed muscle,
so small and slow it is easy not to see it.
My fight is not a fight,
rather it is a realized intention
to shut up and listen,
listen with the ears of my heart,–
that waiting garden, — so
I might then sing and chant and poem
exhortations,
urge others to quiet and still
that they may hear
that they may hear
they may hear
truth.

Listen, listen”,
truth hums in time with heartbeats,
we are one we are one we are one
and what we do to each other,
we do to ourselves.
What we visit upon ourselves
we foist on others. Let it be worthy.”

And when I am all used up and
my bag of gifts is empty,
when my body gives itself
to the fire or to the earth,
when my small voice becomes
an integral part of the great OM
which is the song the Earth
hums as she spins through space,
my piece of the great revolution–
(which I hear from my heart is all of life)–
my peace will be revolutionary.
Post script let them say
let them say
She did what she came here to do,
she shut up and heard
what it was she was called to,
what she was called for,
what she was called to be,
and though it was tiny
it was her own kind of mighty,
it was her own kind of fierce.

 

–Melinda Coppola

 

 

Autism Nation

Autism Nation

fullsizerender

My same different daughter
at twenty three years,
is riddled with anxiety
and complicated fears

Loose beads with holes —
they should be on a string! —
and thunder and lightening,
that power failure they may bring

My same different daughter
moves mountains each day
just to get through the hours,
OCD in her way

She struggles with things
many learn when quite young,
like shampoo, and shower,
and how clothing is hung.

My same different daughter
comprehends, then forgets
she clings to routine,
is indifferent to pets

My daughter, same difference
can be quite verbose
you can think it nonsense
but if you listen, real close,

you’ll begin to glimpse patterns,
and reasons, and more;
you’ll notice her humor,
literal to the core

My same different daughter
sees colors in song
she smiles when she’s anxious
and we get it all wrong

My different same girl
offers such fresh perspective
makes all of their judgments
seem so like invective

My quite different daughter
hasn’t the least bit of care
what you think of her outfit
or how often you stare

My sweet same daughter
gets so much just right
she’s happy with little
prefers loose to tight

Her laugh is heard rarely
but oh! when it flows
she bubbles with joy
from her nose to her toes.

Dear daughter, so different
is teaching me well
about patience, acceptance, and
how none can truly tell

What’s inside the mind,
and the soul, and the heart
of one labeled with autism
of one who stands apart

This daughter, same as you
in the eyes of Creation
is part of the rainbow
which is Autism Nation.

–Melinda Coppola

 

SORRY

A woman and her young daughter
walked by me, heading opposite,

img_7491-3

Art by Bink. Looks like a girl flying to me!

on the narrow sidewalk
outside the Y this morning.

I’m sorry, Older She said
in passing
as women often do,
and though my mouth was silent
I wanted with all my heart to say

Please don’t apologize for taking up space.
If you want to regret anything,
be sorry for shrinking away,
making yourself small.
Anytime. Ever. You most of all,

a mother
to a daughter, will you please
lengthen, and widen. Stand up

and show your big glorious self

Spread your arms wide so
your daughter will see

how to fly.

My mouth stayed shut, though,
conscious as it was
about taking up room on my face.
and I thought, for the hundredth time,
the thousandth;
Those daily speaking engagements
Internally – thought,
Externally, conversation, —
are we not
often, or always,
speaking mostly, actually,
to ourselves?

– Melinda Coppola