April is….on Autism, Art, and Friendly Commerce

APRIL IS… As you may know, April is Autism Awareness Month. It’s also National Card and Letter Writing Month. Please allow me to make things more interesting by combining the two! Bink paints once a week, usually working on two canvases at a time. I also dabble in paints and colored pencils, with a nod […]

AUTISM AWARENESS DAY Redux

I’m re-posting this poem in recognition of “World Autism Awareness Day.”   As D, a sister mom from my autism tribe, has said, ” We are aware. We are very aware.”   Autism Awareness month is April, World Autism Awareness Day, April 2 and, in case the day lacks color, (as if any day with Autism […]

Folliculi, Follicula

TEND and SAVOR “Why the hair is attached to the head it will not come out please respond to me in a video.” These were the first words Bink communicated to me today, shortly after she got up.  I’ve answered this question—one of about six in the current sequence that makes up part of my […]

Headway Happening Here

Smile Last time it was Tuesday, six months and four days ago. The incredible Dr. S managed a first— pedaling the chair back just a bit, your face more accessible, sunglasses shielding your eyes from too-bright light. He touched twenty dulled pearls with his counter, probing slyly, quickly, distracting with wide smiles, silly faces, a […]

What Do You Know?

What do we know for sure? I find myself wondering, lately, if we mostly hold the beliefs that suit our ease. For some, self-contempt can provide a kind of familiarity which becomes belief. For others, there is ease in what’s left after all the anger—which is really a mutation of pain—gets bored and leaves, or […]

Categorically Speaking

Dubbed One name for a collection of can’ts, of never wills and less-thans, a singular bucket into which they dump the myriad ways she comes up short. Autism. The rusty scuttle whose name expands to encompass the collected others— Obsessive Compulsive Disorder Severe anxiety disorder. Chronic polyuria. Lordosis, Kyphosis. Intellectual Disability. Oh, I’ve made peace […]

Accepting Autism

Ten years ago, April was designated Autism Awareness month. April 2 is World Autism Awareness day. There has been a movement towards renaming both of these, replacing awareness with acceptance . Robert Frost wrote,” Always fall in love with what you’re asked to accept. Take what is given, and make it over your way. My […]

Literally

I suppose all parents have those first moments of recognition; the sudden realization that the world has pushed itself inside your child’s innocence, the bittersweet rush of comprehension that s/he will never be quite the same again. Having a child with disabilities creates a different trajectory. Timelines are unpredictable. Those milestones that mark the development […]

A little more “Pub Cred”.

One of my goals as a creative person is to put more of my work out into the world. If writing and art-making gets short shrift in the bigger picture of my life as Bink’s mom and chief advocate—and it does—the amount of time I spend on submissions is barely worth a mention. All writers […]

Notes from a Parallel Universe

I’ve written a fair amount about life with my adult child. As I plod ever so slowly towards creating a book about the journey, it occurs to me that the pace at which I’m working on that is in sync with the overall pace and rhythm of our life together. Bink will turn 28 this […]