Kind or Write?
I’ve been finding it challenging to encapsulate life with my daughter, Bink, lately. Hard to shape words for the page and even for casual conversation with friends, many of whom have their own experiences with parenting and/or caring for people they love who have special needs. It’s not for lack of material. Bink continues to […]
Dear Future Roadmaker
It’s still April, still Autism Awareness month. I’m thinking, as I so often do, of all the people I have met on my journey of raising a daughter with special needs. There have been some wonderful teachers and some exceptional therapists (physical, occupational, speech and language, to name a few). There have been good hearted […]
Arrivals
I’m posting this a day before my daughter’s 26th birthday. I’ve always felt, with certainty, that we were meant to incarnate this way, as mother and daughter, at this particular time in the life of this planet. I don’t need to know why, because I know it’s true. Happy birthday, Bink. You are the best […]
The Meaning of Compassion
The Kuan Yin She keeps watch in the warm corner of my bedroom, her bearing almost more regal for the rivers of cracks and generous chips that mark her faded turquoise. Her right hand, the deliverer of action, folds into Gyan Mudra, the gesture of consciousness. Preparing to take her picture, I haul myself into […]
Little Things
It was, in my home, an ordinary weekend morning. I rose before him, he before her, the felines were fed. I made three different kinds of tea, two prepared with stevia and soymilk, one with honey. It was the latter that sparked it. She who has such challenges, she who’s made such gains, she whom […]
The Sings
Someone posed the question: What is it that brings you untethered delight, especially when nobody is watching? I’ve a bouquet of such things in my heart, but the biggest flower right now would have to be the sings. May I explain? There are some tells. She needn’t speak. Autism tends to announce itself. It’s her […]
Today’s Truth
We all have challenges, right? Bink has rocky periods, when her anxiety rises and OCD rears its particularly ugly head. There is no easy or quick fix for these times, though we try many things. When she hurts, I do, too, with my whole heart. I know things will change, because they always do, but […]
Questions, Questions, Everywhere
When Bink was young, I didn’t know if she’d ever be able to ask questions. She had words at age three and four, five and six, but not in a conversational way. She didn’t point at things. Figuring out what she needed or wanted involved some combination of detective work, intuition, and guessing, the […]
MORE AUTISM AWARENESS: RITUALS
AUTISM AWARENESS MONTH: DAY 18 Routines and rituals. Don’t we all have them? Under the best of circumstances, they can add order, meaning and beauty to our lives. For many people with autism, they go beyond that, offering comfort, safety, structure, and learning opportunities. Life with Bink is rich with these practices and observances, ranging […]
Poetry, Autism, and Statistics, Oh My!
Hello! I’m happy to share that my poem, Autismville, won the Songs of Eretz Readers Choice Award Contest, and another of my poems, 7 AM, came in second! If you’d like to see the official announcement, you can click HERE If you voted in the contest, thank you, thank you! This is an international contest, […]