Accepting Autism
Ten years ago, April was designated Autism Awareness month. April 2 is World Autism Awareness day. There has been a movement towards renaming both of these, replacing awareness with acceptance . Robert Frost wrote,” Always fall in love with what you’re asked to accept. Take what is given, and make it over your way. My […]
Literally
I suppose all parents have those first moments of recognition; the sudden realization that the world has pushed itself inside your child’s innocence, the bittersweet rush of comprehension that s/he will never be quite the same again. Having a child with disabilities creates a different trajectory. Timelines are unpredictable. Those milestones that mark the development […]
Notes from a Parallel Universe
I’ve written a fair amount about life with my adult child. As I plod ever so slowly towards creating a book about the journey, it occurs to me that the pace at which I’m working on that is in sync with the overall pace and rhythm of our life together. Bink will turn 28 this […]
Little Big Thing
“Stay in awe of life. The little things are the big things. “ ― Richie Norton “I’m cold.” Bink had just gotten up, a good hour later than she used to get up on any given pre-Covid Monday. My eyes scanned her body, noting the hybrid pajamas I’d hastily grabbed for her to put on […]
Brown Girl Hair Has Left the Building
Bink loves girl hair. For the uninitiated, this translates to long straight hair hanging down, on a female of any age. Preferably, the hair should be visible equally on the right and left sides of her head. I’ve had long brown hair for 25 of my daughter’s 27 years. At one point, it grazed the […]
WALKING
At twelve, thirteen, fourteen months, when most children begin to walk, or make a show of pulling their soft wobbly bodies to stand, you were content to sit and rub the carpet, watch the fibers grow fuzz beneath hands you didn’t seem to know belonged to you. A plump child you were, with flesh-ringed legs […]
Kind or Write?
I’ve been finding it challenging to encapsulate life with my daughter, Bink, lately. Hard to shape words for the page and even for casual conversation with friends, many of whom have their own experiences with parenting and/or caring for people they love who have special needs. It’s not for lack of material. Bink continues to […]
Pentimento
pentimento noun pen·ti·men·to | \ ˌpen-tə-ˈmen-(ˌ)tō Definition of pentimento A reappearance in a painting of an original drawn or painted element which was eventually painted over by the artist The canvas: my face in the mirror, fifty eight years familiar with this world. Five or six, roaming like the free-range child I was, I caught […]
Dear Future Roadmaker
It’s still April, still Autism Awareness month. I’m thinking, as I so often do, of all the people I have met on my journey of raising a daughter with special needs. There have been some wonderful teachers and some exceptional therapists (physical, occupational, speech and language, to name a few). There have been good hearted […]
Daisy Bell
I’m showing my age, and proudly, when I ask this—do you remember the sweet old song called Daisy Bell? “Daisy, Daisy, tell me your answer, do/ I’m half crazy all for the love of you…” Those lyrics and that tune lodged itself in my memory when I was nine or ten years old. I can clearly visualize […]