My Daughter, the Foodie

The Pies by Bink

Bink loves food. In fact, her relationship with it goes far beyond what tastes good and satisfies her hunger. She loves looking at cookbooks, finding recipes on the computer, and watching cooking shows. The painting subject she selects for her weekly art class is often something edible. The paintings on our walls at home, and the stacked finished canvases along the baseboard in the living room, depict pies, ice cream sundaes, candy apples, oysters, brie cheese, jars of pickles, and other things that make her mouth water.

She enjoys cooking and baking. Although she needs the substantial assistance of another adult and takes frequent breaks, her enthusiasm about picking recipes and helping to make them is always high.

One of my favorite observations about this love affair Bink has with food is the photography it’s generated. The girl takes pictures of everything she eats, or finds appealing. That “everything” means every rendition. If she tastes her own meal or snack and finds it lacking, she has learned to say, sometimes, that it needs more salt, or sweet, or some vinegar. Once the missing taste is added, she’ll take another picture. The food on her plate may look exactly the same as it did a few moments before, but to her it is quite new.

A definite omnivore, my daughter wouldn’t dream of eating pedestrian fare like hamburgers, hot dogs, French fries, or chicken nuggets. I certainly have no problem with her avoidance of those foods, and I do celebrate her widening palate. When she was three years old, she went through a phase where she would eat only blueberries and dry Cheerios. Neither is on her Yes list now. So, what does she eat?

Bink is attracted to the spicy, the sweet, the pungent, and the pickled. In her relatively short life, she’s enjoyed an enormous variety of comestibles that you’ve likely never granted transport across your own lips. She once had Ostrich Carpaccio with her father when she was about ten years old. She loved it, as she has also relished occasional octopus, eel, braised rabbit, many kinds of lamb, a rainbow of pickled plant life, anchovies prepared a number of ways, and a small variety of dried spiced crickets. She salivates at the thought of raw oysters and enjoys Teriyaki seaweed and ostrich jerky as a snack, when available. Very, very few of those things have made it onto my plate.
Most ethnic foods are yesses, especially Indian, Moroccan, and Japanese. She also loves many of the Korean delicacies her dear Aunt Young makes for her. Think homemade Kkaennip Jangajji (pickled Perilla leaves) and Japchae ( spicy glass noodles with vegetables).
Over the years, I’ve honed my cooking skills to suit her palate. Eggplant, bell peppers, smoked duck, goat cheese, and the above-mentioned lamb, are generally high on my own list of Will Not Eat. Still, I can handily transform them into dishes with an Indian, Chinese, or Japanese twist for my gourmet daughter.

Bink takes her lunch to her day program most days, and we plan those lunches together. On Saturdays, she’ll decide what she’d like to have for her lunches during the following week. We shop for the ingredients on Sundays, and cook more or less together most Sunday afternoons. Bink favors warm lunches, so typically she’ll take a lidded ceramic container of soup or stew, along with a side of something pickled or some sticky rice chips, and water. Yesterday morning, however, we had to cobble together a cold lunch, as her day program was headed to Newport, Rhode Island, wouldn’t be back in time for her to heat her lunch. She and I managed with anchovy fillets, some of my recent batch of zucchini pickles, Kalamata olives, and some coconut sticky rice chips, each of those foods nestled into a little Tupperware container. The beverage is always water, which makes it easier.

One of Bink’s quirks is that her food preferences can turn on a dime. When she requests something, it can come from memory, or from perusing cookbooks and The Food Channel. Sometimes, she’ll get very excited at one of my (or our) creations, and will eat it with gusto until it’s gone. Other times, she’ll enjoy it once or twice, and then I’ll get a text during a weekday, or she’ll announce at dinner or breakfast,” I’m tired of ______ (that thing that took two hours to make). ”

On rare occasions, we can negotiate a way to doctor the taste of the food with a seasoning or sauce, and she might deign to try it again. Often, though, she will not touch said food again, at least for a few months. So, we might end up with a container of some very spicy eggplant, or a soup that tastes and smells like strong fish sauce. I really don’t like to waste food, but Superguy and I just don’t have the stomach for some of Bink’s choices. We do know a few hardy souls who enjoy some of these things, so we can share some of the cast-offs as well as the excess from my more successful creations.

I’m well aware of how fortunate we are to be able to offer this quirky gourmet a variety of things she enjoys. It’s important to me that she eat as well rounded a diet as possible, and I have come to enjoy a little adventure in my cooking. Also, not all of her preferences are expensive or unusual. She likes particular pizza from certain places, and she’ll sometimes enjoy garlic bread and simple vegetable soups. Raw carrots are in occasional favor at the moment. She really likes sweets and baked goods, though she limits them to once a day and generally writes four NO TREAT days into her wall calendar. That last one is a story for another time.

Next month, Bink will turn twenty seven. Some kind friends, a family with a wonderful adult son who is also on the spectrum, have invited us out to dinner to celebrate in a few weeks. Bink is already anticipating an order of creamy raita, with just the right amount of tamarind and mint sauces mixed in, to savor with her Peshwari naan. She’ll probably share an appetizer of vegetable Samosas with me. Then there’ll be some kind of spicy lamb dish, and perhaps she’ll have a little of whatever curried vegetable there is to share. For dessert, she will be delighted with some cardamom scented Kheer (Indian rice pudding) or sweet sticky balls of rosewater infused Gulab Jamun.

Truth: Just now, on this Wednesday midday as I sat editing this piece for the blog, Bink called me from her program. That doesn’t happen too often, and usually it means Something Is Wrong. What was today’s message? “ I’m tired of the lemon risotto. Lunch I want balsamic mushroom barley soup tomorrow.” And so it is. Would anyone like a serving of perfectly good parmesan infused lemon risotto?

–Melinda Coppola

The Melting Popsicles by Bink

Dreamed some dreams

“A DREAM NOT INTERPRETED IS LIKE A LETTER NOT READ.”
— The Talmud

Last was a night of serial dreams, each building on the tangled mysteries of the one before. There was big sky, and journeying. There was an impossibly tiny stream and a dusty, broad road that earns the title of a trespass, as it forced a run alongside it. Yes, I said force. If that gives you pause, you may be unaware of the personality traits of waterways, that some welcome the paths that trace their every liquid curve, becoming roads. Some are flattered by such close attention, and others want no companion, no ardent fan to copy their every fork and dip and turn.

I know my boots kicked up dust along said trespassing wanderway, and judging by my sore soles on awakening, I walked miles and miles. One dream had me singing to the glinting snake of a river, cajoling and encouraging it to flow bigger, stronger, to make itself known against the green grasses that stretched away on either side.

The next dream, much more detailed, had me tiny as the river, a miniature woman in clothing that was elfin, or medieval, or some odd mixture of the two. The mini me was weaving blades of grass that were long and wide and heavy to my tiny hands. I remember the aches in the little dream hands mirrored the particular complaints that have settled in my hands in recent wide-awake life. I remember asking my dream self if perhaps this was the real life, and the other one—with its hours of daylight and driving and washing tea mugs— was, in fact, a dream. Ever industrious on some level, elfishly clothed me was weaving a wee canoe from the grasses. I think both dream me and awake me must’ve laughed at that. Miniscule woman, she of the teeny tiny shoes and the pointed hat, constructs transport from a weave and weft of grasses. She makes outsized plan to embark on an epic journey down dust speck river. As soon as she finishes her grass boat she hops in, tosses her plans into the breeze and allows herself to be flowed, because even little Who* sized people know Truth when they see it; we don’t push the river, we don’t freeze the wind.

There were other dreams surrounding these two. I know because I awoke with a mystery of dirt on one elbow, and some scent of lavender in my nose, and my first quick glance out the window caught a tendril of green, a curling thing, hanging from the just-dawn sky. Second glance showed no such thing, but that is The Way of it, after all. We only see what we are ready to take in, and even then it hangs around only as long as we Believe.

–Melinda Coppola

*Dr. Suess wrote a marvelous tale about Horton the Elephant and his startling realization that he was the only thing standing between the destruction of an entire colony of speck-sized people and the continuation of their peaceful way of life.  https://www.teachingchildrenphilosophy.org/BookModule/HortonHearsAWho

Rocking the cosmic swirl

Rocking

It comforts me to know the old
couple across the street
just celebrated fifty years

in the same house. Fifty together years
with the home they perhaps chose
to be new in together,
a threesome of sorts,
their bodies joining brick
and hardened earth
settling and cracking
and pressing together,

adding more spackle
and grout
and laughter

with a child, then three more,
adding rooms
to contain the growing
and the mirth
and the tears
of those who were
fledged,
now gone.

When my soul grows weary
traversing tightropes—
such fast-paced, overloaded,
know-too-much times—
I look across the street,

to the wise and wizened pair
who are ever so busy
slowly rocking, in their old chairs,
on the porch,

and it consoles me to witness them,
soothes me to consider
the old ways of houses
and their people,
and the history of aged dwellings anywhere,
the ways these wood and stone
talismans seem to lean into
a wind or two that can elicit creaks,
groans even,

and their occupants
maybe know
they are being held up
by sagging floorboards
and crumbling plaster,
and the roof is losing shingles
fast as hairs on their heads,

yet they rock, and nod,
and smile
as if to say

where are you rushing to,
and don’t you know
all things fall apart.
We do, too,

so why not sit awhile,
give the swirling
sediment of your ancestors,
and the greening pollen
that falls from the trees
like stardust in the daytime,
a place to land.

See how the wind marries the light,
begets little particles of evidence
that you’re alive,
that others have been, too,
and ragweed and dander,
detritus of the whole cosmic swirl,

touch down on your arms,
have little dances
before they settle there.

 

–Melinda Coppola

 

 

 

Returning to Autismville

 

Good day!

Below, the second of three of my poems that are eligible for the Readers Choice Award over at Songs of Eretz. 

Here is the poem, along with the Editor’s words and poets notes from the journal:

Editor’s Note:  Nominees for the Songs of Eretz Readers Choice Award have been or will be published/reprinted in Songs of Eretz Poetry Review every weekday from February 19 to February 27.  Vote for your favorite in March by sending an email to Editor@SongsOfEretz.com.  The winner will be announced in April and receive a one hundred dollar honorarium.

Autismville

Melinda Coppola

I can’t tell you
it is an unpleasant thing
to live in the quirky neighborhood,
on the far side of the river,
a good ways from the thickest part
of the frantic throng.

Here, we are daily looking up,
fixating and stimming
on green minnow leaves
that shimmer against the waters of the sky.

Here we have our own customs;
the daily waking song,
the recitation of dreams,
the morning questions and videotaped answer
for her to play back over and over,
the reassurances:
Yes, there will be snack. Yes, Mom is a girl.
Yes, there will be girl hair when we leave.

The life we’ve grown into,
first she and I and then he
who married into this confluence
of ordered disorder,
this life has authentic charm.

We go slow, we don’t try to measure up.
Our victories are sweeter
for how long they take to manifest
and mysterious
for how quickly they can disappear.

I can’t say it’s tragic in this virtual village,
this parallel universe
peopled with other singular folk
who understand the need for things
like space and processing time,
patience and velvet compassion,
smooth voices, soft dolls,
sweet routine and
more spice in everything.

We have magic here, I tell you.
Songs that play in color,
voices with texture,
folks who spin and swing and
hum and sing.

And the leaves! The glorious
minnow leaves,
dancing upstream,
between the clouds,
and laughing.

Poet’s Notes:  My young adult daughter lives with my husband and me.  She also lives with Autism, Obsessive Compulsive Disorder and a great deal of anxiety. She presents as quite challenged to the uninitiated eye, and our lives are far from typical.

I often feel that we live in a parallel universe, moving at an entirely different pace while the world speeds past.  The children of friends and family meet their expected milestones and move on, and we amble and pause, spin in circles, and forge our own footpaths through the weedy brush. Our milestones are different, but if and when they come, we celebrate them well and take nothing for granted.

It’s not an easy life but it’s also not the grand tragedy that some people seem to believe it is. I wrote this poem to offer a different perspective to those who feel sorry for us and those who move in the faster, more conventional lanes.

About the Poet:  Melinda Coppola has been writing in some form for nearly five decades.  Her work has been published in several magazines, books, and periodicals including I Come from the World, Harpur Palate, Kaleidoscope, The Autism Perspective, Spirit First, Chicken Soup for the Soul, Welcome Home, and Celebrations.  She is an artist, yoga teacher, and mother to an amazing daughter with special needs and enjoys infusing the work of her heart with her voice as a poet.

Coppola nourishes her creative spirit with singing, early morning walks, collecting and making art with beach stones, cooking, spending quiet time with her husband and daughter, and communing with her cats.  This poem was first published on her personal blog twenty four may on June 8 2017.

 

Welcome to Autismville

 

Shimmering minnow leaves

AUTISMVILLE

I can’t tell you
it is an unpleasant thing
to live in the quirky neighborhood,
on the far side of the river,
a good ways from the thickest part
of the frantic throng.

Here, we are daily looking up,
fixating and stimming
on green minnow leaves
that shimmer against the waters of the sky.

Here we have our own customs;
the daily waking song,
the recitation of dreams,
the morning questions and videotaped answer
for her to play back over and over,
the reassurances:
Yes, there will be snack. Yes, Mom is a girl.
Yes, there will be girl hair when we leave.

The life we’ve grown into,
first she and I and then he
who married into this confluence
of ordered disorder,
this life has authentic charm.

We go slow, we don’t try to measure up.
Our victories are sweeter
for how long they take to manifest
and mysterious
for how quickly they can disappear.

I can’t say it’s tragic in this virtual village,
this parallel universe
peopled with other singular folk
who understand the need for things
like space and processing time,
patience and velvet compassion,
smooth voices, soft dolls,
sweet routine and
more spice in everything.

We have magic here, I tell you.
Songs that play in color,
voices with texture,
folks who spin and swing and
hum and sing.

And the leaves! The glorious
minnow leaves,
dancing upstream,
between the clouds,
and laughing.

Melinda Coppola

 

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Dots and Dashes

Shirts must be pink, or occasionally “pool”…

She speaks in code, Bink does, and I endeavor to decipher. She works rather hard, in her neuro-atypical way, at making sense of the world. As her mother and Chief Advocate and Interpreter, it is my dharma to help the world make sense of her.

We walk parallel to the others, next to but ever separate from the niceties of everyday etiquette, the social customs of this place and time. Try as we might, ( and we do try, usually) the distance between us and the others, the “typicals”, seems a little wider by the quarter moon, the fortnight.

We sandblast as we go, hew a serviceable path and call it road. In retrospect she will have surely perseverated on a multitude of things, in any given month of any year. It’s an intrinsic part of her skill set, and she does it well. For example: Why did __________ have a dangerous voice when she said no three times in a row on the Raquel chips Tuesday in the silly-silly-when column? That was in the year 2000, by the way. I know this, and roughly what was happening at that moment, because I have heard this exact question at least one hundred and fifty times over the years, and I have answered it each time in perhaps ten different ways. “ I don’t know” is not an acceptable answer, so I ask a few questions of my own, gather clues, piece things together. Sometimes the answer satisfies, sometimes it is clearly wrong. She is occasionally able to articulate a new detail, so I learn a little more each year. This is just one example of the hundreds of repetitive questions that populate my life with Bink. It’s fascinating, really, and it cultivates a wild patience.

There are always dots and dashes, codes and patterns that order my days. Take, for fair example, the laundry.

Splatterings of oils; could be olive or walnut, canola or ghee. These make wide patterns like the cosmos on a velvet sky. There are drops like stars; some large and hard to miss, some so tiny
they are barely visible to the eye. These can be found flung asymmetrically across the shirts, rubbed wildly into the thighs of pants, mysteriously pressed into the seat. An anarchy of art, or stain.

There are the squiggles, little wavy lines calling up my inner detective. Brown: could be coconut aminos, our alternative to sauces such as soy or hoisin. Or could it be chocolate? This calls for a review of her last few days, and then I remember that Thursday afternoon sweet éclair. There are also grand sweeps of things; green curry, crimson siracha, curled across the cotton like big cursive letters spelling out a gleeful early dinner.  Blobs, like asteroids crusted and clustered, could be smashed chevre, wild rice, couscous laced with parmesan, and pecorino.

The laundry basket bubbles up with all these garments, abstract perpetual records of her days. I pull each one out, smooth it, inspect for the artists’ signature, assess which treatment plan
will erase, release, allow for swift return to a home drawer.

Bink has an odd relationship with clothes. They must be stretchy, soft, mostly free of snaps and zippers and buttons — nothing to bind, scratch or pinch. Shirts must be pink, with the rare exception of “pool”, which is a particular shade of blue.

When she is upset, her pants are fertile ground from which her fingers will seed holes, which sprout and flourish. Once she burst in after school with half her bottoms flapping in the breeze like a maxi-skirt, the entire outside of one pants leg torn open.

So, the laundry. It’s not that she cares about stains, or how she appears to any of you. I am the one who notices the ways of the world, who sees how she is daily judged. In line at the market her hands flap, bird-like, and she sings a whole CD, in order, from memory. She has a voice like an angel, and some have ears to hear this, her sparkling soul. Others see the Morse code on her clothes, dots and dashes, a little tear with hole-y aspirations. So I , the one who knows her best, every freckle and scar, dot and dash of her, will keep erasing the distractions of yesterday’s menu on her shirt. And I will hope, and sometimes pray, that this will give more people the ears to hear her song.

 

-Melinda Coppola

 

 

 

 

 

 

The Feather and the Leaf

 

Picture this: it was cold, and I stood among trees. Many, many trees. I looked up, and there they were. A feather and a leaf, floating through the air, not quite up or down but sideways, lifted along by some gusts of coldish wind. Could they be friends, and traveling together? I ruminated on this while formulating interview questions to ask them about their roots and their journeys, specifically this one.

Before I continue, true confession: I know the language of forks and plates and furniture and random other things considered to be not-alive. These so-called inanimates communicate clearly, and I happen to hear them and usually endeavor to fulfill their simple requests, like placement in drawers and cupboards and being allowed a good slant of afternoon sun. It’s the least I can do, given all they do for us. There are many stories there, but they must wait for another time. Stories are good at that, have you noticed?

Anyway….

I was thinking, that day among the trees, that the language of feathers and flying leaves might be beyond my reach. Oh, I feel pretty sure that if I’d studied their languages when I was young, I’d be able to bridge any communication gap now. Like so many things, though, I put away my forest fancies and my birdy songs when I was oh, so young. The bigs told me other things were more. More important, more acceptable, more real. And so, like littles everywhere, I abandoned my whimsy and denied my fairy genes.

There I go again, with the digression thing. It happens all the time; words arise that just must be written and as I honor them I lose sight of—well, in this case, I lost sight of the feather and the leaf. They disappeared around a corner, between a few big trees. Which got me to wondering if I could ask the trees if they’d seen them. Which got me to wondering if I could learn the language of trees. Which brings me here, to this writing, and gets me wondering if the Grammar Police will ticket me for starting multiple sentences with Which.

So much of life is attitude, and so much of attitude is belief, and so, so much of belief is faith. And so I, mid-life and of the flesh, stood rooted in my sturdy shoes that day in the damp woods, feeling just a tickle of breeze tingling my scapula in just those places my wings tried to sprout so long ago. There are scars, I’m pretty sure, on the spots where I ground my little back against the walls of my room, rubbing out the tips of feathers that came once, thrice, six times before they gave up. My thoracic spine is a graveyard, I realized then, and a longing arose to unearth those feathery thwarted things, to sing them back to life and learn finally and just in time how to fly. And (sorry Grammar Police), I chose right then and there to follow this desire as it leads me down a path or up a hill. I decided to let myself rise and feel a gust of coldish wind carry me and my new old wings along to the place where feathers and leaves might be friends, where we would and will play in the wind and commune a bit, and talk of many, many things.

–Melinda Coppola