What Do You Know?

What do we know for sure? I find myself wondering, lately, if we mostly hold the beliefs that suit our ease. For some, self-contempt can provide a kind of familiarity which becomes belief. For others, there is ease in what’s left after all the anger—which is really a mutation of pain—gets bored and leaves, or […]

Look up! The world is out there.

Reckoning Inside, just shy of sunrise, all over the land people awakened, reached for their small screens, hungry for the tiny words and pictures, memes and videos designed to amuse, entrance, distract from stress and angst of bad news streaming 24/7. The people found ways to laugh, or groan, and see themselves in the scowls […]

Categorically Speaking

Dubbed One name for a collection of can’ts, of never wills and less-thans, a singular bucket into which they dump the myriad ways she comes up short. Autism. The rusty scuttle whose name expands to encompass the collected others— Obsessive Compulsive Disorder Severe anxiety disorder. Chronic polyuria. Lordosis, Kyphosis. Intellectual Disability. Oh, I’ve made peace […]

For some who left

STAY I want to dematerialize and put myself back together between his reedy young body and the gun he stole from his Uncle’s desk drawer the night they invited him for dinner. I want to land hard between her hands— the same hands that had just held an acceptance letter for the DC job of […]

Accepting Autism

Ten years ago, April was designated Autism Awareness month. April 2 is World Autism Awareness day. There has been a movement towards renaming both of these, replacing awareness with acceptance . Robert Frost wrote,” Always fall in love with what you’re asked to accept. Take what is given, and make it over your way. My […]

Literally

I suppose all parents have those first moments of recognition; the sudden realization that the world has pushed itself inside your child’s innocence, the bittersweet rush of comprehension that s/he will never be quite the same again. Having a child with disabilities creates a different trajectory. Timelines are unpredictable. Those milestones that mark the development […]

Notes from a Parallel Universe

I’ve written a fair amount about life with my adult child. As I plod ever so slowly towards creating a book about the journey, it occurs to me that the pace at which I’m working on that is in sync with the overall pace and rhythm of our life together. Bink will turn 28 this […]

Me and My Shadow Go to Market

It is May 2020, still early in The Covid Times. We take ourselves to the market, by which I mean our whole selves, me in my layers of self-consciousness— the run of the mill kind that most of us don without thought— she baring all, as usual: no pretense, nothing to hide. The market rule […]

LATELY

The ground seems foreign, new roots and stones anchored in the middle of familiar paths, and my feet stumble more, much more. Are you stumbling too? Such heavy air, a downward press on the shoulders makes it hard to look up, check out the sky. I can’t speak for you, but I feel your heart […]

Medicament

Medicament This morning’s waking, tight and tender to the touch, felt like neck ache, and all along the spine of this day my heart climbed and slid, ridge-riding the grief and uncertainty of these past months, pushing up towards bone-like pinnacles, vertebraic protrusions of more bad news— illness and violence, economic cancer, people hating their […]