(She is) Unbroken
Unbroken There were times I imagined you different. My young mother mind pictured you— normal, typical, non-disabled. I can’t use those words anymore for their opposites evoke— lack, absence, tragedy, and you, my child, are a celebration of plenty, a bounty of delight, a well of fascination. In fact, you stand against the backdrop of […]
The Life Cycle of a Day
Bink and I walk outside a lot. We are blessed with a number of parks and nature sanctuaries in our area, and we know some of them quite well. This poem stemmed from a particular ramble early last spring. I’m pleased that Willows Wept Review chose to publish it in their fall issue. The […]
A Little Bullish
I know, I know. Much is not right here in the world. We conjure and raise up hatreds and fears born of misconceptions. We bow down to profit and convention instead of the goodness in each other. We make wars, first with ourselves, and then with those we call other. We perpetrate unspeakable violence against […]
April is….on Autism, Art, and Friendly Commerce
APRIL IS… As you may know, April is Autism Awareness Month. It’s also National Card and Letter Writing Month. Please allow me to make things more interesting by combining the two! Bink paints once a week, usually working on two canvases at a time. I also dabble in paints and colored pencils, with a nod […]
AUTISM AWARENESS DAY Redux
I’m re-posting this poem in recognition of “World Autism Awareness Day.” As D, a sister mom from my autism tribe, has said, ” We are aware. We are very aware.” Autism Awareness month is April, World Autism Awareness Day, April 2 and, in case the day lacks color, (as if any day with Autism […]
Folliculi, Follicula
TEND and SAVOR “Why the hair is attached to the head it will not come out please respond to me in a video.” These were the first words Bink communicated to me today, shortly after she got up. I’ve answered this question—one of about six in the current sequence that makes up part of my […]
Headway Happening Here
Smile Last time it was Tuesday, six months and four days ago. The incredible Dr. S managed a first— pedaling the chair back just a bit, your face more accessible, sunglasses shielding your eyes from too-bright light. He touched twenty dulled pearls with his counter, probing slyly, quickly, distracting with wide smiles, silly faces, a […]
What Do You Know?
What do we know for sure? I find myself wondering, lately, if we mostly hold the beliefs that suit our ease. For some, self-contempt can provide a kind of familiarity which becomes belief. For others, there is ease in what’s left after all the anger—which is really a mutation of pain—gets bored and leaves, or […]
Categorically Speaking
Dubbed One name for a collection of can’ts, of never wills and less-thans, a singular bucket into which they dump the myriad ways she comes up short. Autism. The rusty scuttle whose name expands to encompass the collected others— Obsessive Compulsive Disorder Severe anxiety disorder. Chronic polyuria. Lordosis, Kyphosis. Intellectual Disability. Oh, I’ve made peace […]
Literally
I suppose all parents have those first moments of recognition; the sudden realization that the world has pushed itself inside your child’s innocence, the bittersweet rush of comprehension that s/he will never be quite the same again. Having a child with disabilities creates a different trajectory. Timelines are unpredictable. Those milestones that mark the development […]