Folliculi, Follicula

TEND and SAVOR “Why the hair is attached to the head it will not come out please respond to me in a video.” These were the first words Bink communicated to me today, shortly after she got up.  I’ve answered this question—one of about six in the current sequence that makes up part of my […]

Headway Happening Here

Smile Last time it was Tuesday, six months and four days ago. The incredible Dr. S managed a first— pedaling the chair back just a bit, your face more accessible, sunglasses shielding your eyes from too-bright light. He touched twenty dulled pearls with his counter, probing slyly, quickly, distracting with wide smiles, silly faces, a […]

What Do You Know?

What do we know for sure? I find myself wondering, lately, if we mostly hold the beliefs that suit our ease. For some, self-contempt can provide a kind of familiarity which becomes belief. For others, there is ease in what’s left after all the anger—which is really a mutation of pain—gets bored and leaves, or […]

Categorically Speaking

Dubbed One name for a collection of can’ts, of never wills and less-thans, a singular bucket into which they dump the myriad ways she comes up short. Autism. The rusty scuttle whose name expands to encompass the collected others— Obsessive Compulsive Disorder Severe anxiety disorder. Chronic polyuria. Lordosis, Kyphosis. Intellectual Disability. Oh, I’ve made peace […]

Literally

I suppose all parents have those first moments of recognition; the sudden realization that the world has pushed itself inside your child’s innocence, the bittersweet rush of comprehension that s/he will never be quite the same again. Having a child with disabilities creates a different trajectory. Timelines are unpredictable. Those milestones that mark the development […]

Me and My Shadow Go to Market

It is May 2020, still early in The Covid Times. We take ourselves to the market, by which I mean our whole selves, me in my layers of self-consciousness— the run of the mill kind that most of us don without thought— she baring all, as usual: no pretense, nothing to hide. The market rule […]

Little Big Thing

“Stay in awe of life. The little things are the big things. “ ― Richie Norton “I’m cold.” Bink had just gotten up, a good hour later than she used to get up on any given pre-Covid Monday. My eyes scanned her body, noting the hybrid pajamas I’d hastily grabbed for her to put on […]

The Uninvited Guests

What a time! We are seeing and hearing wide ranging effects of the Covid-19 pandemic on, it seems, every populated part of our planet. In our corner of the world, Bink’s autism and accompanying dependence on schedules has collided headfirst with current realities. Every activity in her life, from her weekday program to her favored […]

Brown Girl Hair Has Left the Building

Bink loves girl hair. For the uninitiated, this translates to long straight hair hanging down, on a female of any age. Preferably, the hair should be visible equally on the right and left sides of her head. I’ve had long brown hair for 25 of my daughter’s 27 years. At one point, it grazed the […]

My Daughter, the Foodie

Bink loves food. In fact, her relationship with it goes far beyond what tastes good and satisfies her hunger. She loves looking at cookbooks, finding recipes on the computer, and watching cooking shows. The painting subject she selects for her weekly art class is often something edible. The paintings on our walls at home, and […]